Illness beliefs and emotional responses in mildly disabled stroke survivors: A qualitative study


Autoři: Claire Della Vecchia aff001;  Marie Préau aff002;  Camille Carpentier aff002;  Marie Viprey aff001;  Julie Haesebaert aff001;  Anne Termoz aff001;  Alexandra L. Dima aff001;  Anne-Marie Schott aff001
Působiště autorů: Univ. Lyon, Université Claude Bernard Lyon 1, HESPER EA 7425, Lyon, France aff001;  GRePS Lyon 2 Université, University of Lyon, Bron, France aff002;  Aix-Marseille Université, INSERM UMR 912 SESSTIM, Marseille, France aff003;  Hospices Civils de Lyon, Pôle Santé Publique, Lyon, France aff004
Vyšlo v časopise: PLoS ONE 14(10)
Kategorie: Research Article
doi: 10.1371/journal.pone.0223681

Souhrn

Background

As acute stroke services improve, more persons experience mild stroke and need to cope daily with hidden disabilities, which may be influenced by how they perceive stroke, cognitively and emotionally.

Objective

To investigate cognitive illness beliefs and emotional responses in persons with mild stroke and their possible influences on daily coping.

Methods

Semi-structured interviews were conducted with 24 persons with mild stroke, on average 7.5 months (±0.89) after stroke occurrence. A thematic analysis on verbatim transcripts was guided by the Common-Sense Model of Self-Regulation.

Results

All participants experienced difficulties constructing an illness identity at both acute and chronic phase. Behavioral risk factors were less accepted as causes of stroke. Lack (or inappropriate timing) of information from healthcare providers led to limited medication knowledge and low perceived control of stroke recurrence which generated anxiety, fear, and low involvement in coping. Participants who considered stroke a chronic condition experienced more difficulties. Perceived support from relatives and healthcare providers was beneficial for participation in recovery and health behaviour change.

Conclusion

Despite having mildly disabilities, participants reported difficulties developing illness beliefs conducive to coping, and dealing with their emotional responses. These elements should be considered in tailored programs to improve coping with hidden disabilities post-stroke.

Klíčová slova:

Behavioral and social aspects of health – Cognitive impairment – Disabilities – Emotions – Fatigue – Health care providers – Mental health and psychiatry – Stroke


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Článek vyšel v časopise

PLOS One


2019 Číslo 10