Real-world data about emotional stress, disability and need for social care in a German IBD patient cohort

Autoři: Alica Kubesch aff001;  Patric Boulahrout aff002;  Natalie Filmann aff003;  Irina Blumenstein aff001;  Johannes Hausmann aff001
Působiště autorů: Department of Internal Medicine 1, Goethe-University Hospital, Frankfurt, Germany aff001;  Department 4 Social Work and Health, Frankfurt University of Applied Sciences, Frankfurt, Germany aff002;  Institute of Biostatistics and Math Modeling, Goethe-University Hospital, Frankfurt, Germany aff003
Vyšlo v časopise: PLoS ONE 15(1)
Kategorie: Research Article
doi: 10.1371/journal.pone.0227309


To date, there is insufficient insight into inflammatory bowel disease (IBD)-associated stress, recognized disability, and contact with the social care system. We aimed to assess these parameters in IBD patients and a non-IBD control group, who were invited to participate in an online survey developed specifically for this study ( with the help of IBD patients. 505 IBD patients and 166 volunteers (i.e., control group) participated in the survey. IBD patients reported significantly increased levels of stress within the last six months and five years (p<0.0001) and were more likely to have a recognized disability (p<0.0001). A low academic status was the strongest indicator of a disability (p = 0.006). Only 153 IBD patients (30.3%) reported contact with the social care system, and a disability was the strongest indicator for this (p<0.0001). Our study provides data on stress and disability in a large unselected German IBD cohort. We showed that patients with IBD suffer more often from emotional stress and more often have a recognized disability. As only about 1/3 of the patients had come into contact with the social care system and the corresponding support, this patient group is undersupplied in this area.

Klíčová slova:

Crohn's disease – Disabilities – Emotions – Inflammatory bowel disease – Physicians – Psychological stress – Surveys – Ulcerative colitis


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2020 Číslo 1