Quality of life of caregivers of patients with progressive neurological disease

Česká verze

Authors: R. Kozáková; R. Bužgová
Authors place of work: Ústav ošetřovatelství a porodní asistence, LF OU, Ostrava
Published in the journal: Cesk Slov Neurol N 2018; 81(6): 653-657
Category: Přehledný referát
doi: https://doi.org/10.14735/amcsnn2018653

Summary

Progressive neurological diseases have a profound impact on the quality of life of patients and their family caregivers. Abroad, questionnaires and scales are used to evaluate caregivers’ quality of life and to provide follow-up support and individualized care. The aim of this review article is to describe and analyze the scales used in assessing the quality of life of caregivers of patients with progressive neurological diseases. By searching in electronic databases, 11 specific scales designed to assess caregivers’ quality of life were found – out of which 6 specific tools for caregivers of patients with dementia, 2 tools for caregivers of patients with Huntington’s disease, 1 scale for caregivers of patients with multiple sclerosis, and 2 scales for caregivers of patients with Parkinson’s disease. These scales are recommended to be used in both clinical practice and research.

Key words:

quality of life –⁠ caregiver –⁠ progressive neurological diseases

The authors declare they have no potential conflicts of interest concerning drugs, products, or services used in the study.

The Editorial Board declares that the manuscript met the ICMJE “uniform requirements” for biomedical papers.

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