1. Alzheimer's Disease International (2009) World alzheimer report 2009. London: Alzheimer's Disease International. Available: http://www.alz.co.uk/research/files/WorldAlzheimerReport.pdf. Accessed 18 September 2012.
2. Alzheimer's Disease International (2010) World alzheimer report 2010: the global economic impact of dementia. London: Alzheimer's Disease International. Available: http://www.alz.co.uk/research/files/WorldAlzheimerReport2010.pdf. Accessed 18 September 2012.
3. IliffeS, BooroffA, GallivanS, GoldenbergE, MorganP, et al. (1990) Screening for cognitive impairment in the elderly using the mini-mental state examination. Br J Gen Pract 40: 277–279.
4. BoustaniM, PetersonB, HansonL, HarrisR, LohrKN (2003) Screening for dementia in primary care: a summary of the evidence for the U.S. Preventive Services Task Force. Ann Intern Med 138: 927–937.
5. BanerjeeS, ChanJ (2008) Organisation of old age psychiatric services. Psychiatry 7: 49–54.
6. UK National Audit Office (2010) Improving dementia services in England—an interim report. London: UK National Audit Office.
7. RaitG, WaltersK, BottomleyC, PetersenI, IliffeS, et al. (2010) Survival of people with clinical diagnosis of dementia in primary care: cohort study. BMJ 341: c3584.
8. BamfordC, LamontS, EcclesM, RobinsonL, MayC, et al. (2004) Disclosing a diagnosis of dementia: a systematic review. Int J Geriatr Psychiatry 19: 151–169.
9. IliffeS, ManthorpeJ, EdenA (2003) Sooner or later? Issues in the early diagnosis of dementia in general practice: a qualitative study. Fam Pract 20: 376–381.
10. UK National Institute for Health and Clinical Excellence, Social Care Institute for Excellence (2006) Dementia: supporting people with dementia and their carers. NICE clinical guidance 42. Available: http://www.nice.org.uk/nicemedia/pdf/CG042NICEGuideline.pdf. Accessed 26 August 2012.
11. UK National Audit Office (2007) Improving services and support for people with dementia. London: UK National Audit Office.
12. UK Department of Health (2010) Quality outcomes for people with dementia: building on the work of the national dementia strategy. London: UK Department of Health.
13. BanerjeeS, WillisR, MatthewsD, ContellF, ChanJ, et al. (2007) Improving the quality of care for mild to moderate dementia: an evaluation of the Croydon Memory Service Model. Int J Geriatr Psychiatry 22: 782–788.
14. MittelmanMS, RothDL, ClayOJ, HaleyWE (2007) Preserving health of Alzheimer caregivers: impact of a spouse caregiver intervention. Am J Geriatr Psychiatry 15: 780–789.
15. Lingard J, Milne A (2004) First Signs—celebrating the achievements of the Dementia Advice and Support Service: a project for people in the early stages of dementia. London: Mental Health Foundation.
16. Dixon-WoodsM, FitzpatrickR (2001) Qualitative research in systematic reviews. Has established a place for itself. BMJ 323: 765–766.
17. SteemanE, de CasterleBD, GodderisJ, GrypdonckM (2006) Living with early-stage dementia: a review of qualitative studies. J Adv Nurs 54: 722–738.
18. De BoerME, HertoghC, DroesRM, RiphagenII, JonkerC, et al. (2007) Suffering from dementia-the patient's perspective: a review of the literature. Int Psychogeriatr 19: 1021–1039.
19. RobinsonL, GemskiA, AbleyC, BondJ, KeadyJ, et al. (2011) The transition to dementia—individual and family experiences of receiving a diagnosis: a review. Int Psychogeriatr 23: 1026–1043.
20. LecouturierJ, BamfordC, HughesJC, FrancisJJ, FoyR, et al. (2008) Appropriate disclosure of a diagnosis of dementia: identifying the key behaviours of ‘best practice’. BMC Health Serv Res 8: 95.
21. GreenhalghT, PeacockR (2005) Effectiveness and efficiency of search methods in systematic reviews of complex evidence: audit of primary sources. BMJ 331: 1064–1065.
22. Spencer L, Ritchie J, Lewis J, Dillon L (2003) Quality in qualitative evaluation: a framework for assessing research evidence. London: UK Government Chief Social Researcher's Office. Available: http://www.uea.ac.uk/edu/phdhkedu/acadpapers/qualityframework.pdf. Accessed 18 September 2012.
23. BunnF, DickinsonA, Barnett-PageE, HortonK (2008) A systematic review of older people's perceptions of facilitators and barriers to participation in falls prevention interventions. Ageing Soc 28: 449–472.
24. PocockM, TrivediD, WillsW, BunnF, MagnussonJ (2010) Parental perceptions regarding healthy behaviours for preventing overweight and obesity in young children: a systematic review of qualitative studies. Obes Rev 11: 338–353.
25. MarstonC, KingE (2006) Factors that shape young people's sexual behaviour: a systematic review. Lancet 368: 1581–1586.
26. CampbellR, PoundP, PopeC, BrittenN, PillR, et al. (2003) Evaluating meta-ethnography: a synthesis of qualitative research on lay experiences of diabetes and diabetes care. Soc Sci Med 56: 671–684.
27. BrittenN, CampbellR, PopeC, DonovanJ, MorganM, et al. (2002) Using meta ethnography to synthesise qualitative research: a worked example. J Health Serv Res Policy 7: 209–215.
28. MarstonC (2004) Gendered communication among young people in Mexico: implications for sexual health interventions. Soc Sci Med 59: 445–456.
29. ThomasJ, HardenA (2008) Methods for the thematic synthesis of qualitative research in systematic reviews. BMC Med Res Methodol 8: 45.
30. AdamsKB (2006) The transition to caregiving: the experience of family members embarking on the dementia caregiving career. J Gerontol Soc Work 47: 3–29.
31. AdamsT (1994) The emotional experience of caregivers to relatives who are chronically confused—implications for community mental health nursing. Int J Nurs Stud 31: 545–553.
32. AdamsonJ (2001) Awareness and understanding of dementia in African/Caribbean and South Asian families. Health Soc Care Community 9: 391–396.
33. BamfordC, BruceE (2000) Defining the outcomes of community care: the perspectives of older people with dementia and their carers. Ageing Soc 20: 543–570.
34. BanninghLJW, Vernooij-DassenM, RikkertMO, TeunisseJP (2008) Mild cognitive impairment: coping with an uncertain label. Int J Geriatr Psychiatry 23: 148–154.
35. BeardRL (2004) In their voices: identity preservation and experiences of Alzheimer's disease. J Aging Stud 18: 415–428.
36. BeardRL, FettermanDJ, WuB, BryantL (2009) The two voices of Alzheimer's: attitudes toward brain health by diagnosed individuals and support persons. Gerontologist 49: S40–S49.
37. BeardRL, FoxPJ (2008) Resisting social disenfranchisement: negotiating collective identities and everyday life with memory loss. Soc Sci Med 66: 1509–1520.
38. BeattieA, Daker-WhiteG, GilliardJ, MeansR (2004) ‘How can they tell?’ A qualitative study of the views of younger people about their dementia and dementia care services. Health Soc Care Community 12: 359–368.
39. BenbowSM, OngYL, BlackS, GarnerJ (2009) Narratives in a users' and carers' group: meanings and impact. Int Psychogeriatr 21: 33–39.
40. BliesznerR, RobertoKA, WilcoxKL, BarhamEJ, WinstonBL (2007) Dimensions of ambiguous loss in couples coping with mild cognitive impairment. Fam Relat 56: 196–209.
41. BoiseL, MorganDL, KayeJ, CamicioliR (1999) Delays in the diagnosis of dementia: perspectives of family caregivers. Am J Alzheimers Dis Other Demen 14: 20.
42. BowesA, WilkinsonH (2003) ‘We didn't know it would get that bad’: South Asian experiences of dementia and the service response. Health Soc Care Community 11: 387–396.
43. BruceDG, PatersonA (2000) Barriers to community support for the dementia carer: a qualitative study. Int J Geriatr Psychiatry 15: 451–457.
44. ButcherHK, HolkupPA, BuckwalterKC (2001) The experience of caring for a family member with Alzheimer's disease. West J Nurs Res 23: 33–55.
45. ByszewskiAM, MolnarFJ, AminzadehF, EisnerM, GardeziF, et al. (2007) Dementia diagnosis disclosure: a study of patient and caregiver perspectives. Alzheimer Dis Assoc Disord 21: 107–114.
46. CahillS, BegleyE, TopoP, SaarikalleK, MacijauskieneJ, et al. (2004) ‘I know where this is going and I know it won't go back’: hearing the individual's voice in dementia quality of life assessments. Dementia 3: 313–330.
47. CahillSM, GibbM, BruceI, HeadonM, DruryM (2008) ‘I was worried coming in because I don't really know why it was arranged’: the subjective experience of new patients and their primary caregivers attending a memory clinic. Dementia 7: 175–189.
48. ClareL (2002) Developing awareness about awareness in early-stage dementia: the role of psychosocial factors. Dementia 1: 295–312.
49. ClareL, RothI, PrattR (2005) Perceptions of change over time in early-stage Alzheimer's disease: implications for understanding awareness and coping style. Dementia 4: 487–520.
50. ClareL, ShakespeareP (2004) Negotiating the impact of forgetting: dimensions of resistance in task-oriented conversations between people with early-stage dementia and their partners. Dementia 3: 211–232.
51. CornerL, BondJ (2006) The impact of the label of mild cognitive impairment on the individual's sense of self. Philos Psychiatr Psychol 13: 3–12.
52. CotrellV, LeinL (1992) Awareness and denial in the Alzheimer's disease victim. J Gerontol Soc Work 19: 115–132.
53. DebS, HareM, PriorL (2007) Symptoms of dementia among adults with Down's syndrome: a qualitative study. J Intellect Disabil Res 51: 726–739.
54. DerksenE, Vernooij-DassenM, GillissenF, Olde RikkertM, ScheltensP (2006) Impact of diagnostic disclosure in dementia on patients and carers: qualitative case series analysis. Aging Ment Health 10: 525–531.
55. DugganS, BlackmanT, MartyrA, Van SchaikP (2008) The impact of early dementia on outdoor life: a ‘shrinking world’? Dementia 7: 191–205.
56. DugglebyW, WilliamsA, WrightK, BollingerS (2009) Renewing everyday hope: the hope experience of family caregivers of persons with dementia. Issues Ment Health Nurs 30: 514–521.
57. FrankL, LloydA, FlynnJA, KleinmanL, MatzaLS, et al. (2006) Impact of cognitive impairment on mild dementia patients and mild cognitive impairment patients and their informants. Int Psychogeriatr 18: 151–162.
58. GilliesBA (2000) A memory like clockwork: accounts of living through dementia. Aging Ment Health 4: 366–374.
59. GilmourH, GibsonF, CampbellJ (2003) Living alone with dementia: a case study approach to understanding risk. Dementia 2: 403–420.
60. GilmourJA, HuntingtonAD (2005) Finding the balance: living with memory loss. Int J Nurs Pract 11: 118–124.
61. HainD, TouhyTA, EngströmG (2010) What matters most to carers of people with mild to moderate dementia as evidence for transforming care. Alzheimers Care Today 11: 162.
62. HarmanG, ClareL (2006) Illness representations and lived experience in early-stage dementia. Qual Health Res 16: 484–502.
63. HarrisPB, KeadyJ (2004) Living with early onset dementia: exploring the experience and developing evidence-based guidelines for practice. Alzheimers Care Today 5: 111–122.
64. HarrisPB, SterinGJ (1999) Insider's perspective: defining and preserving the self of dementia. J Ment Health Aging 5: 241–256.
65. HellströmI, NolanM, LundhU (2005) Awareness context theory and the dynamics of dementia. Dementia 4: 269.
66. HintonL, FranzC, FriendJ (2004) Pathways to dementia diagnosis: evidence for cross-ethnic differences. Alzheimer Dis Assoc Disord 18: 134–144.
67. HintonWL, LevkoffS (1999) Constructing Alzheimer's: narratives of lost identities, confusion and loneliness in old age. Cult Med Psychiatry 23: 453–475.
68. HolstG, HallbergIR (2003) Exploring the meaning of everyday life, for those suffering from dementia. Am J Alzheimers Dis Other Demen 18: 359–365.
69. HoworthP, SaperJ (2003) The dimensions of insight in people with dementia. Aging Ment Health 7: 113–123.
70. HulkoW (2009) From ‘not a big deal’ to ‘hellish’: experiences of older people with dementia. J Aging Stud 23: 131–144.
71. HutchingsD, VanoliA, McKeithI, BrothertonS, McNameeP, et al. (2010) Good days and bad days: the lived experience and perceived impact of treatment with cholinesterase inhibitors for Alzheimer's disease in the United Kingdom. Dementia 9: 409–425.
72. HutchinsonSA, Leger-KrallS, WilsonHS (1997) Early probable Alzheimer's disease and awareness context theory. Soc Sci Med 45: 1399–1409.
73. JanssonW, NordbergG, GrafströmM (2001) Patterns of elderly spousal caregiving in dementia care: an observational study. J Adv Nurs 34: 804–812.
74. Jutlla K, Moreland N (2007 March) Twice a child III: the experience of Asian carers of older people with dementia in Wolverhampton. London: Dementia UK.
75. KatsunoT (2005) Dementia from the inside: how people with early-stage dementia evaluate their quality of life. Ageing Soc 25: 197–214.
76. Keady J, Gilliard J (1999) The early experience of Alzheimer's disease: implications for partnership and practice. In: Adams T, Clarke CL, editors. Dementia care: developing partnerships in practice. London: Bailliere Tindall. pp. 227–256.
77. KoppelOSB, DallosR (2007) The development of memory difficulties: a journey into the unknown. Dementia 6: 193–213.
78. LaakkonenML, RaivioMM, Eloniemi-SulkavaU, SaarenheimoM, PietiläM, et al. (2008) How do elderly spouse care givers of people with Alzheimer disease experience the disclosure of dementia diagnosis and subsequent care? J Med Ethics 34: 427–430.
79. LangdonSA, EagleA, WarnerJ (2007) Making sense of dementia in the social world: a qualitative study. Soc Sci Med 64: 989–1000.
80. DavisLL, GillissCL, Deshefy-LonghiT, ChestnuttDH, MolloyM (2011) The nature and scope of stressful spousal caregiving relationships. J Fam Nurs 17: 224–240.
81. de WittL, PloegJ, BlackM (2010) Living alone with dementia: an interpretive phenomenological study with older women. J Adv Nurs 66: 1698–1707.
82. LeungKK, FinlayJ, SilviusJL, KoehnS, McClearyL, et al. (2011) Pathways to diagnosis: exploring the experiences of problem recognition and obtaining a dementia diagnosis among Anglo-Canadians. Health Soc Care Community 19: 372–381.
83. KuoLM, ShyuYI (2010) Process of ambivalent normalisation: experience of family caregivers of elders with mild cognitive impairment in Taiwan. J Clin Nurs 19: 3477–3484.
84. RobertoKA, BliesznerR, McCannBR, McPhersonMC (2011) Family triad perceptions of mild cognitive impairment. J Gerontol B Psychol Sci Soc Sci 66: 756–768.
85. LawrenceV, MurrayJ, SamsiK, BanerjeeS (2008) Attitudes and support needs of Black Caribbean, south Asian and White British carers of people with dementia in the UK. Br J Psychiatry 193: 240–246.
86. LawrenceV, SamsiK, BanerjeeS, MorganC, MurrayJ (2010) Threat to valued elements of life: the experience of dementia across three ethnic groups. Gerontologist 51: 39–50.
87. LinglerJH, NightingaleMC, ErlenJA, KaneAL, ReynoldsCF3rd, et al. (2006) Making sense of mild cognitive impairment: a qualitative exploration of the patient's experience. Gerontologist 46: 791–800.
88. LivingstonG, LeaveyG, ManelaM, LivingstonD, RaitG, et al. (2010) Making decisions for people with dementia who lack capacity: qualitative study of family carers in UK. BMJ 341: c4184.
89. LuYF, HaaseJE (2009) Experience and perspectives of caregivers of spouse with mild cognitive impairment. Curr Alzheimer Res 6: 384–391.
90. MacQuarrieCR (2005) Experiences in early stage Alzheimer's disease: understanding the paradox of acceptance and denial. Aging Ment Health 9: 430–441.
91. MacRaeH (2010) Managing identity while living with Alzheimer's disease. Qual Health Res 20: 293–305.
92. MahoneyDF, CloutterbuckJ, NearyS, ZhanL (2005) African American, Chinese, and Latino family caregivers' impressions of the onset and diagnosis of dementia: cross-cultural similarities and differences. Gerontologist 45: 783–792.
93. Manthorpe J, Samsi K, Campbell S, Abley C, Keady J, et al.. (2011) The transition from cognitive impairment to dementia: older people's experiences. Southampton: NIHR Service Delivery and Organisation Programme.
94. MasonE, ClareL, PistrangN (2005) Processes and experiences of mutual support in professionally-led support groups for people with early-stage dementia. Dementia 4: 79–112.
95. MenneHL, KinneyJM, MorhardtDJ (2002) ‘Trying to continue to do as much as they can do’: theoretical insights regarding continuity and meaning making in the face of dementia. Dementia 1: 367–382.
96. MokE, LaiCK, WongFL, WanP (2007) Living with early-stage dementia: the perspective of older Chinese people. J Adv Nurs 59: 591–600.
97. Moniz-CookE, ManthorpeJ, CarrI, GibsonG, Vernooij-DassenM (2006) Facing the future: a qualitative study of older people referred to a memory clinic prior to assessment and diagnosis. Dementia 5: 375.
98. Moreland N (2001) Twice a child: dementia care for African-Caribbean and Asian older people in Wolverhampton. London: Dementia UK.
99. Moreland N (2003) Twice a child II: service development for dementia care for African-Caribbean and Asian older people in Wolverhampton. London: Dementia UK.
100. MukadamN, CooperC, BasitB, LivingstonG (2011) Why do ethnic elders present later to UK dementia services? A qualitative study. Int Psychogeriatr 23: 1070–1077.
101. MurrayJ, SchneiderJ, BanerjeeS, MannA (1999) EUROCARE: a cross-national study of co-resident spouse carers for people with Alzheimer's disease: II—a qualitative analysis of the experience of caregiving. Int J Geriatr Psychiatry 14: 662–667.
102. NeufeldA, HarrisonMJ (2003) Unfulfilled expectations and negative interactions: nonsupport in the relationships of women caregivers. J Adv Nurs 41: 323–331.
103. NygardL, BorellL (1998) A life-world of altering meaning: expressions of the illness experience of dementia in everyday life over 3 years. Occup Ther J Res 18: 109–136.
104. O'ConnorDL (1999) Living with a memory-impaired spouse: (re)cognizing the experience. Can J Aging 18: 211–235.
105. OstwaldSK, DugglebyW, HepburnKW (2002) The stress of dementia: view from the inside. Am J Alzheimers Dis Other Demen 17: 303–312.
106. PearceA, ClareL, PistrangN (2002) Managing sense of self: coping in the early stages of Alzheimer's disease. Dementia 1: 173.
107. PerryJ, O'ConnorD (2002) Preserving personhood: (re)membering the spouse with dementia. Fam Relat 51: 55–62.
108. PhinneyA (1998) Living with dementia: from the patient's perspective. J Gerontol Nurs 24: 8–16.
109. PhinneyA (2006) Family strategies for supporting involvement in meaningful activity by persons with dementia. J Fam Nurs 12: 80–101.
110. PollittPA, O'ConnorDW, AndersonI (1989) Mild dementia: perceptions and problems. Ageing Soc 9: 261–275.
111. PostSG, StuckeyJC, WhitehousePJ, OllertonS, DurkinC, et al. (2001) A focus group on cognition-enhancing medications in Alzheimer disease: disparities between professionals and consumers. Alzheimer Dis Assoc Disord 15: 80.
112. PrattR, WilkinsonH (2003) A psychosocial model of understanding the experience of receiving a diagnosis of dementia. Dementia 2: 181.
113. PrestonL, MarshallA, BucksRS (2007) Investigating the ways that older people cope with dementia: a qualitative study. Aging Ment Health 11: 131–143.
114. QuinnC, ClareL, PearceA, van DijkhuizenM (2008) The experience of providing care in the early stages of dementia: an interpretative phenomenological analysis. Aging Ment Health 12: 769–778.
115. RobinsonL, ClareL, EvansK (2005) Making sense of dementia and adjusting to loss: psychological reactions to a diagnosis of dementia in couples. Aging Ment Health 9: 337–347.
116. RobinsonP, EkmanSL, MeleisAI, WinbladB, WahlundLO (1997) Suffering in silence: the experience of early memory loss. Health Care Later Life 2: 107–120.
117. SamuelssonAM, AnnerstedtL, ElmståhlS, SamuelssonSM, GrafströmM (2001) Burden of responsibility experienced by family caregivers of elderly dementia sufferers. Scand J Caring Sci 15: 25–33.
118. Seabrooke V, Milne A (2004) Culture and care in dementia: a study of the Asian community in north west Kent. London: The Mental Health Foundation.
119. ShajiKS, SmithaK, LalKP, PrinceMJ (2003) Caregivers of people with Alzheimer's disease: a qualitative study from the Indian 10/66 Dementia Research Network. Int J Geriatr Psychiatry 18: 1–6.
120. SmithAP, BeattieBL (2001) Disclosing a diagnosis of Alzheimer's disease: patient and family experiences. Can J Neurol Sci 28(Suppl 1): S67–S71.
121. SteemanE, GodderisJ, GrypdonckM, De BalN, Dierckx de CasterleB (2007) Living with dementia from the perspective of older people: is it a positive story? Aging Ment Health 11: 119–130.
122. SterrittPF, PokornyME (1998) African-American caregiving for a relative with Alzheimer's disease. Geriatr Nurs 19: 127–124, 127-128, 133-124.
123. SvanstromR, DahlbergK (2004) Living with dementia yields a heteronomous and lost existence. West J Nurs Res 26: 671–687.
124. TeelCS, CarsonP (2003) Family experiences in the journey through dementia diagnosis and care. J Fam Nurs 9: 38.
125. TodresL, GalvinK (2006) Caring for a partner with Alzheimer's disease: intimacy, loss and the life that is possible. Int J Qual Stud Health Well-being 1: 50–61.
126. Van DijkhuizenM, ClareL, PearceA (2006) Striving for connection: appraisal and coping among women with early-stage Alzheimer's disease. Dementia 5: 73.
127. VelloneE, SansoniJ, CohenMZ (2002) The experience of Italians caring for family members with Alzheimer's disease. J Nurs Scholarsh 34: 323–329.
128. WatkinsR, ChestonR, JonesK, GilliardJ (2006) ‘Coming out’ with Alzheimer's disease: changes in awareness during a psychotherapy group for people with dementia. Aging Ment Health 10: 166–176.
129. WerezakL, StewartN (2002) Learning to live with early dementia. Can J Nurs Res 34: 67–85.
130. WestiusA, AnderssonL, KallenbergK (2009) View of life in persons with dementia. Dementia 8: 481–500.
131. WolversonEL, ClarkeC, Moniz-CookE (2010) Remaining hopeful in early-stage dementia: a qualitative study. Aging Ment Health 14: 450–460.
132. AminzadehF, ByszewskiA, MolnarFJ, EisnerM (2007) Emotional impact of dementia diagnosis: exploring persons with dementia and caregivers' perspectives. Aging Ment Health 11: 281–290.
133. BliesznerR, RobertoKA (2010) Care partner responses to the onset of mild cognitive impairment. Gerontologist 50: 11–22.
134. ClareL (2002) We'll fight it as long as we can: coping with the onset of Alzheimer s disease. Aging Ment Health 6: 139–148.
135. ClareL (2003) ‘I'm still me’: living with the onset of dementia. J Dement Care 11: 32–35.
136. ClareL (2003) Managing threats to self: awareness in early stage Alzheimer's disease. Soc Sci Med 57: 1017–1029.
137. CloutterbuckJ, MahoneyDF (2003) African American dementia caregivers: the duality of respect. Dementia 2: 221.
138. ConnellCM, BoiseL, StuckeyJC, HolmesSB, HudsonML (2004) Attitudes toward the diagnosis and disclosure of dementia among family caregivers and primary care physicians. Gerontologist 44: 500–507.
139. DerksenE, Vernooij-DassenM, GillissenF, Olde-RikkertM, ScheltensP (2005) The impact of diagnostic disclosure in dementia: a qualitative case analysis. Int Psychogeriatr 17: 319–326.
140. FoxK, HintonWL, LevkoffS (1999) Take up the caregiver's burden: stories of care for urban African American elders with dementia. Cult Med Psychiatry 23: 501–529.
141. GalvinK, TodresL, RichardsonM (2005) The intimate mediator: a carer's experience of Alzheimer's. Scand J Caring Sci 19: 2–11.
142. HarrisPB, KeadyJ (2009) Selfhood in younger onset dementia: transitions and testimonies. Aging Ment Health 13: 437–444.
143. HellstromI, NolanM, LundhU (2005) ‘We do things together’: a case study of ‘couplehood’ in dementia. Dementia 4: 7.
144. HellströmI, NolanM, LundhU (2007) Sustaining ‘couplehood’. Dementia 6: 383.
145. HicksMH, LamMS (1999) Decision-making within the social course of dementia: accounts by Chinese-American caregivers. Cult Med Psychiatry 23: 415–452.
146. JolleyD, MorelandN, ReadK, KaurH, JutllaK, et al. (2009) The ‘Twice a Child’ projects: learning about dementia and related disorders within the black and minority ethnic population of an English city and improving relevant services. Ethn Inequal Health Soc Care 2: 4–9.
147. NearySR, MahoneyDF (2005) Dementia caregiving: the experiences of Hispanic/Latino caregivers. J Transcult Nurs 16: 163–170.
148. OrtizA, SimmonsJ, HintonWL (1999) Locations of remorse and homelands of resilience: notes on grief and sense of loss of place of Latino and Irish-American caregivers of demented elders. Cult Med Psychiatry 23: 477–500.
149. PhinneyA (2002) Fluctuating awareness and the breakdown of the illness narrative in dementia. Dementia 1: 329–344.
150. PhinneyA, ChaudhuryH, O'ConnorDL (2007) Doing as much as I can do: the meaning of activity for people with dementia. Aging Ment Health 11: 384–393.
151. PhinneyA, CheslaCA (2003) The lived body in dementia. J Aging Stud 17: 283–299.
152. Pratt R, Wilkinson H (2001) ‘Tell me the truth’: the effect of being told the diagnosis of dementia from the perspective of the person with dementia. London: The Mental Health Foundation.
153. RobinsonP, EkmanSL, WahlundLO (1998) Unsettled, uncertain and striving to understand: toward an understanding of the situation of persons with suspected dementia. Int J Aging Hum Dev 47: 143–161.
154. Vernooij-DassenM, DerksenE, ScheltensP, Moniz-CookE (2006) Receiving a diagnosis of dementia: the experience over time. Dementia 5: 397.
155. De WittL, PloegJ, BlackM (2009) Living on the threshold: the spatial experience of living alone with dementia. Dementia 8: 263–291.
156. BarrosoJ, GollopCJ, SandelowskiM, MeynellJ, PearcePF, et al. (2003) The challenges of searching for and retrieving qualitative studies. West J Nurs Res 25: 153–178.
157. WongSS, WilczynskiNL, HaynesRB (2004) Developing optimal search strategies for detecting clinically relevant qualitative studies in MEDLINE. Stud Health Technol Inform 107: 311–316.
158. Dixon-WoodsM, ShawRL, AgarwalS, SmithJA (2004) The problem of appraising qualitative research. Qual Saf Health Care 13: 223–225.
159. UK Department of Health (2009) Living well with dementia—the National Dementia Strategy Joint commissioning framework for dementia. London: UK Department of Health.