Quality of life of caregivers – family members of patients with severe dementia


Authors: MUDr. Milan Stolička
Authors‘ workplace: Léčebna dlouhodobě nemocných Klokočov
Published in: Geriatrie a Gerontologie 2014, 3, č. 4: 159-164
Category: Original Article/Study

Overview

The aim of the research was to identify the most common needs and their fulfillment by caregivers - family members of patients with severe dementia who are hospitalized in Long-term care institution. Another objective was to find out whether there is diversity of these needs and their fulfillment by sex, age and education.The group included 87 caregivers – family members of patients with severe dementia who were hospitalized in Long-term care institution Klokocov. For data collection questionnaire was used FIN (Family Inventory of Needs) to measure the needs of family members. Main needs of carers were identified in the area of basic information and patient comfort. In all the areas needs of carers (basic information, information about treatment and care, support, patient comfort) prevailed inadequate or only partial repletion of these needs. Women achieve higher fullness of basic information. With the increasing level of education declined repletion support needs. In the age group 61-65 years was less need for basic information and higher repletion needs of the patient‘s comfort. The results obtained showed preference the needs of carers, their relatively low level of fulfillment and the need to improve communication between health workers and caregivers of patients with severe dementia. It is essential to the education of professionals in this area and ensure appropriate educational materials for caregivers.

Keywords:
caregivers – family members of patients with dementia – needs and their fulfillment


Sources

1. Davies N, Maio L, Rait G, Iliffe S: Quality end-of-life care for dementia: What have family carers told us so far? A narrative synthesis. Palliative Medicine [online] 2014; 28(7): 919–930.

2. Gillernová I, Kebza V, Rymeš M a kol.: Psychologické aspekty změn české společnosti člověk na přelomu tisíciletí. Praha: Grada Publishing 2011. 36 s.

3. Peeters JM, Van Beek APA, Meerveld JHCM et al.: Informal caregivers of persons with dementia, their use of and needs for specific professional support: a survey of the National Dementia Programme. BMC Nursing [online] 2010; sv. 9, s. 9–16.

4. Miranda-Castillo C, Woods B, Orrell M: The needs of people with dementia living at home from user, caregiver and professional perspectives: a cross-sectional survey. BMC Health Services Research [online] 2013; 13(1): 1–10.

5. Rosa E, Lussignoli G, Sabbatini F, et al.: Needs of caregivers of the patients with dementia. Archives of Gerontology and Geriatrics 2010; 51: 54–58.

6. Russell C, Middleton H, Shanley C: Dying with dementia: the views of family caregivers about quality of life. Australasian Journal on Ageing [online] 2008; 27(2): 89–92.

7. Losada A, Pérez-Peñaranda A, Rodriguez-Sanchez E, et al.: Leisure and distress in caregivers for elderly patients. Archives of Gerontology and Geriatrics [online] 2010; 50(3): 347–350.

8. Abdollahpour I, Noroozian M, Nedjat S, Majdzadeh R: Caregiver Burden and its Determinants among the Family Members of Patients with Dementia in Iran. International Journal of Preventive Medicine [online] 2012; 3(8): 544–551.

9. Bužgová R, Macháčková G, Pažáková V: Hodnocení potřeb rodinných příslušníků v paliativní péči. Kontakt [online] 2013; 15(1): 29–37.

10. Marková M: Sestra a pacient v paliativní péči. Praha: Grada Publishing 2010. 75–85.

11. Venglařová M: Problematické situace v péči o seniory. Praha: Grada Publishing 2007. 80–85.

12. Hasson F, Spence A, Waldron M et al.: Experiences and Needs of Bereaved Carers during Palliative and End-of-Life Care for People with Chronic Obstructive Pulmonary Disease. Journal of Palliative Care 2009; 25(3): 157–163.

Labels
Geriatrics General practitioner for adults Orthopaedic prosthetics
Login
Forgotten password

Don‘t have an account?  Create new account

Forgotten password

Enter the email address that you registered with. We will send you instructions on how to set a new password.

Login

Don‘t have an account?  Create new account