Problems in quality of life assessment in seniors
Authors:
J. Mareš
Authors‘ workplace:
Lékařská fakulta v Hradci Králové
; Univerzita Karlova v Praze
Published in:
Prakt. Lék. 2014; 94(1): 22-31
Category:
Of different specialties
Overview
The review study focuses on the assessment of quality of life in old age and in clinical situations. First, both the concept of quality of life including the quality of life in old age is characterized. Second, several examples of qualitative approach in assessment of quality of life in old age are presented. Eight generic questionnaires, which are generally used in this area of research, are analyzed in detail. Another twelve specific questionnaires, which are used with regard to quality of life affected by a particular disease in old age, are described. The review study also mentions examples, in which an applied questionnaire combines both generic and specific items. The final part of the study summarizes drawbacks of questionnaires which are currently used, particularly the following: a) emphasis on the researcher’s perspective at the expense of the senior person’s perspective; b) an assumption of an average senior; c) neglecting both social and cultural context of seniors’ life; d) ignoring of weights of several variables, which may affect seniors’ quality of life; a) need for an individualized assessment.
Keywords:
quality of life – old age – seniors – assessment – qualitative approach – questionnaires – individualized assessment
Sources
1. Ardelt M. Are older adult wiser than college students? A comparison of two age cohorts. J Adult Dev 2010; 17(4): 193–207.
2. Arnold S. Measurement of quality of life in frail elderly. In Birren JE, Lubben JE, Rowe JC. (eds.) The concept and measurement of quality of life in frail elderly. San Diego: Academic Press 1991; 28–73.
3. Bajekal M, Blane D, Grewal I, et al. Ethnic differences in influences on quality of life at older ages? A qualitative analysis. Aging Society 2004; 24: 709–728.
4. Boušková E. Vztah mezi religiozitou a kvalitou života (bakalářská práce). Brno: FSS MU 2009.
5. Bowling A. The psychometric properties of the older people’s quality of life questionnaire, compared with CASP–19 and the WHOQOOL-OLD. Curr Gerontol Geriatr Res 2009. Published online 2010 February 1. doi: 10.1155/2009/298950.
6. Bowling A, Gabriel Z. Lay theories of quality of life in older age. Aging Society 2007, 27: 827–848.
7. Bowling A, Hankins M, Windew G, et al. A short measure of quality of life in older age: the performance of the brief older people’s quality of life questionnaire (OPQOL-Brief). Arch Gerontol Geriatr 2013; 56: 181–187.
8. Bowling A, Stenner P. Which measure of quality of life perform best in older age: a comparison of the OPQOL, CASP-19 and WHOQOL-OLD. J Epidemiol Community Health 2011; 65: 273–280.
9. Brown J, Bowling A, Flynn T. Models of quality of life: a taxonomy, overview and systematic review of literature. In Proceedings of European Forum on Population Ageing Research. Sheffield: Department of Sociological Studies 2004. Dostupné na: http://www.ageingresearch.group.shef.ac.uk/pdf/qol_review_no_tables.pdf.
10. Carr AJ, Higginson IJ. Measuring quality of life: are quality of life measures patient centered? BMJ 2001; 322(7298): 1357–1360.
11. Čeledová L, Čevela R, Doležal T. a kol. Health Technology Assessment (HTA) v principech a zásadách posuzování stupně závislosti. Prakt. Lék. 2012; 92(5): 267–269.
12. Cummins RA. The domains of life satisfaction: an attempt to order chaos. Soc Indic Res 1996; 38: 303–328.
13. Dijkers MP. Individualization in quality of life measurement: instruments and approaches. Arch Phys Med Rehabil 2003; 84(4, Suppl 2): S3–S14.
14. Duncan PW, Wallace D, Lai SM, et al. The stroke impact scale version 2.0: evaluation of reliability, validity and sensitivity to change. Stroke 1999; 30: 2131–2140.
15. Dvořáčková D. Kvalita života seniorů v domovech pro seniory. Praha: Grada Publishing 2012.
16. Fang J, Power M, Lin Y, et al. Development of short versions for the WHOQOL-OLD Module. Gerontologist 2011; 52(1): 66–78.
17. Fernández-Ballesteros R, Santacreu-Ivars M. Aging and quality of life. In Stone JH, Blouin M. (eds.) International Encyclopedia of Rehabilitation, 2012. Dostupné na: http://cirrie.buffalo.edu/encyclopedia/en/article/296/.
18. Fox-Rushby J, Parker M. Culture and the measurement of health-related quality of life. Eur Rev Appl Psychol 1995; 45: 257–263.
19. Hawthorne G, Richardson J, Day N. Using the assessment of quality of life – AQoL. Version 1. (Technical report no. 12). Melbourne: Monash University, Centre for Health Program Evaluation 2000.
20. Hickey A, Barker M, McGee H, et al. Measuring health-related quality of life in older patient population. Pharmacoeconomics 2005; 23(10): 971–993.
21. Hickey A, Bury G, O’Boyle CA, et al. A New Short Form Individual Quality of Life Measure (SEIQoL–DW): Application in a cohort of individuals with HIV/AIDS. BMJ 1996; 313(1): 29–33.
22. Hickey A, O’Boyle CA, McGee HM, et al. The schedule for the evaluation of individual quality of life. In Joyce, C.R., O’Boyle, C.A., McGee, H.M. (Eds.) Individual quality of life approaches to conceptualisation and assessment. Amsterdam: Harwood 1999: 119–133.
23. Holzhausen M, Kuhlmey A, Martus P. Individualized measurement of quality of life in older adults: development and pilot testing of a new tool. Eur J Ageing 2012; 7(3): 201–211.
24. Hyde M, Wiggins RD, Higgs P, et al. A measure of quality of life in early old age: the theory, development and properties of a needs satisfaction model (CASP-19). Aging Ment Health 2003; 7(3): 186–194.
25. Jaeschke R, Guyatt G, Cook D, et al. Spectrum quality of life impairment in hyperthyroidism. Quality of Life Research 1994; 3: 323–327.
26. Kane RA. Definition, measurement, and correlates of quality of life in nursing homes: toward a reasonable practice, research, and policy agenda. Gerontologist 2003; 43(Spec 2): 28–36.
27. Kane RA, Kane RL, Bershadsky B, et al. Measures, indicators, and improvement of quality of life in nursing homes: final report, vol. 1. Minneapolis: University of Minnesota, School of Public Health 2004.
28. Kasper JD, Black BS, Shore A, et al. Evaluation of the validity and reliability of the alzheimer disease-related quality of life assessment instrument. Alzheimer Dis Assoc Disord 2009; 23(3): 275–284.
29. Křivohlavý J. Psychologie zdraví. Praha: Portál 2001.
30. Kvalita života ve stáří. Národní program přípravy na stárnutí na léta 2008 až 2012. Praha: Ministerstvo práce a sociálních věcí ČR 2008.
31. Levasseur M, Tribble D, Desrosier J. Meaning of quality of life for older adults: importance of human functioning components. Arch Gerontol Geriatr 2009; 49: 91–100.
32. Logsdon RG, Gibbons LE, Mccurry SM, et al. Assessing quality of life in older adults with cognitive impairment. Psychosom Med 2002; 64: 510–519.
33. Logsdon RG, Gibbons LE, Mccurry SM, et al. Quality of life in Alzheimer’s disease: patient and caregiver reports. J Ment Health Aging 1999; 5(1): 21–32.
34. Lukacs B, Comet D, Grange JC, et al. Construction and validation of a short–form benign prostatic hypertrophy health-related quality-of-life questionnaire. Br J Urol 1997; 80: 722–730.
35. Malley JN, Towers AM, Netten AP, et al. An assessment of the construct validity of the ASCOT measure of social care-related quality of life with older people. Health Qual Life Outcomes 2012; 10: 21. Published online 2012 February 10. doi: 10.1186/1477–7525–10–21.
36. Mareš J. Kvalita života a její proměny v čase u téhož jedince. Čs. psychologie 2005; 44(1): 20–34.
37. Mareš J. Individualizované zjišťování kvality života. In Mareš J. a kol. Kvalita života u dětí a dospívajících III. Brno: MSD 2008;
38. Minaya P, Baumstark K, Berbis J, et al. The cargiver oncology quality of life questionnaire (CarGQoL): development and validation of an instrument to measure the quality of life on the caregivers of patients with cancer. Eur J Cancer 2012; 48: 904–911.
39. Nicholson C, Meyer J, Flatley M, et al. The experience of living at home with frailty in old age: a psychological qualitative study. Int J Nurs Stud 2013; 50: 1172–1179.
40. O’Boyle CA, Mcgee H, Hickey A, et al. Individual quality of life in patients undergoing hip replacement. Lancet 1992; 339: 1088–1091.
41. Ondrušová J. Měření kvality života u seniorů. Čes. geriatr. rev. 2009; 7(1): 36–39.
42. Osteoporosis Quality of Life Study Group. Measuring quality of life in women with osteoporosis. Osteoporos Int 1997; 7: 478–487.
43. Paschoal SM, Filho WJ, Litvoc J. Development of elderly quality of life index-EQOLI: theoretical-conceptual framework, chosen methodology, and relevant items generation. Clinics 2007; 62(3): 279–288.
44. Paschoal SM, Filho WJ, Litvoc J. Development of elderly quality of life index-eqoli: item reduction and distribution into dimensions. Clinics 2008; 63(2): 179–188.
45. Patel KK, Veenstra DL, Patrick DL. A review of selected patient-generated outcome measures and their application in clinical trial. Value Health 2003; 6(5): 595–603.
46. Patrick DL, Martin ML, Bushnell DM, et al. Quality of life of women with urinary incontinence. Urology 1999; 53(1): 71–76.
47. Phillips L, Davies SJ, White E. Health-related quality of life assessment in end-stage renal failure. J Res Nurs 2001; 6: 658–670.
48. Power M, Quinn K, Schmidt S. World Health Organization Quality of Life – Old Group. Development of the WHOQOL-OLD Module. Qual Life Res 2005; 14(10): 2197–2214.
49. Rector TS, Kubo SH, Cohn J. Patient’s self-assessment of their congestive heart failure. Part 2. Content, reliability and validity new measure. Heart Failure 1987; 3(5): 198–209.
50. Ritvo PG, Fischer JS, Miller DM, et al. Multiple sclerosis quality of life inventory: a user’s manual. New York: National Multiple Sclerosis Society 1997.
51. Ruch W, Proyer RT, Weber M. Humor as a character strength among the elderly. Z Gerontol Geriatr 2010; 43(1): 13–18.
52. Schwartz CE, Sprangers MA. (eds.) Adaptation to changing health. Response shift in quality-of-life research. Washington: American Psychological Association 2000.
53. Steinhauser KE, Clipp EC, Bosworth HB, et al. Measuring quality of life at the end of life: validation of the QUAL-E. Palliat Support Care 2004; 2(1): 3–14.
54. Stenner PH, Cooper D, Skevington SM. Putting the Q into quality of life; identification of subjective constructions of health-related quality of life using Q methodology. Soc Sci Med 2003; 57: 2161–2172.
55. Veenhoven R. The four qualities of life. J Happiness Stud, 2000; 1(1): 1–39.
56. Ventry IM, Weinstein BE, Spitzer JB. The hearing handicap inventory for the elderly: a new tool. Ear Hear 1982; 3(3): 128–134.
57. Vickrey BG, Nays RD, Hrooni R, et al. A health-related quality of life measure for multiple sclerosis. Qual Life Res 1995; 4: 187–206.
58. Walker A. Quality of life in old age in Europe. In Walker A. (ed.) Growing Older in Europe. Maidenhead: Open University Press 2005: 1–29.
59. Weiner MF, Martin-Cook K, Svetlik DA, et al. The quality of life in late-stage dementia (QUALID) scale. J Am Med Dir Assoc 2000; 1(3): 114–116.
60. WHO Quality of Life Group. WHO QOL Study Protocol. Geneva: WHO 1993.
61. WHO Quality of Life Group. The World Health Organisation Quality of Life Assessment (WHOQOL): Position paper from the World Health Organisation. Soc Sci Med 1995; 41: 1403–1409.
62. Williams LS, Weinberger M, Harris LE, et al. Development of a stroke-specific quality of life scale. Stroke 1999; 30(7): 1362–1369.
63. Wolffsohn JS, Cochrane AL. Design of the low vision quality of life questionnaire (LVQOL) and measuring the outcome of low vision rehabilitation. Am J Ophthalmol 2000; 130(6): 793–802.
64. Xavier FM, Ferraz MP, Marc N, et al. Elderly people’s definition of quality of life. Rev Bras Psiquiatr 2003; 25(1): 31–39.
65. Zimermanová M. Subjektívne vnímaná kvalita života seniorov žijúcich v rezidenciálnych podmienkach. Lifelog Learning – celoživotní vzdělávání 2012; 2(2): 40–55.
Labels
General practitioner for children and adolescents General practitioner for adultsArticle was published in
General Practitioner
2014 Issue 1
Most read in this issue
- Paediatric trigger finger
- Problems in quality of life assessment in seniors
- Concept of the branch of General Practice
- Immunoglobulin substitution therapy in patients with primary immunodeficiency