The impact of a child’s disability on sibling relationship in the family
Authors:
V. Schmidtová 1; K. Molnárová Letovancová 1; J. Slaný 1,2,3
Authors‘ workplace:
Fakulta zdravotníctva a sociálnej práce Trnavskej univerzity, Slovensko
1; Univerzita Tomáše Bati, Zlín, Česká republika
2; Klinika pediatrie, Fakultná nemocnica Trnava, Slovensko
3
Published in:
Čes-slov Pediat 2019; 74 (5): 265-270.
Category:
Original Papers
Overview
Aim: The aim of our research was to find out the nature of sibling relationships, if at least one of the siblings has a disability.
Sample and setting: The research sample of our research was the siblings of children with disabilities. Our research was attended by 332 respondents aged from 6 to 45 years. We used a standardized valid research tool, the Sibling Perception Questionnaire, which tells us about the disability response in the dimensions: interpersonal responses and relationships, intrapersonal survival, communication and fear of disability. Normality of distribution was tested by the Kolmogor-Smirnov test, Kruskal-Wallis test and Spearman correlation analysis.
Results: The average score reached by respondents was 53.957831 points, indicating the relatively positive relationships of respondents with the sibling with disability. However, other data analyzes have also revealed the negative impact of disability on the sibling relationship in the area of internal survival of the respondent and communication. We investigated statistically significant differences in three dimensions – interpersonal responses and relationships, communication and fear of disability based on the age of the respondents, the age of their siblings, their place of residence and the self-governing region in which they live. Correlations were found between sibling responses to disability in all four dimensions, based on the age of the respondents, the age of their siblings and the number of siblings.
Conclusion: Within possible recommendations, we emphasize the need for increased attention to the siblings of children with disability, especially at younger age. It is important to focus on the inner survival of siblings, their relationships with the environment and the area of their communication, which, according to our research results, can negatively affect the sibling relationship.
Keywords:
disability – siblings – relationship – family
Sources
1. Abi Daoud MS, Dooley JM, Gordon KE. Depression in parents of children with Duchenne muscular dystrophy. Pediatr Neurol 2004; 31 (1): 16–19.
2. Baiardini I, et al. Quality of life in Duchenne muscular dystrophy: the subjective impact on children and parents. J Child Neurol 2011; 26 (6): 707–713.
3. Harding R. Children with cancer: the needs of siblings. Prof Nurse 1996; 11 (9): 588–590.
4. Nielsen KM, et al. Parental perceptions of sibling relationships in families rearing a child with a chronic condition. J Pediatr Nurs 2012; 27 (1): 34–43.
5. Kárová Š, a kol. Sourozenci onkologicky nemocných dětí: subjektivně vnímané změny v životě a kvalita jejich života 6 měsiců po stanovení diagnózy nemocného sourozence. Československá Psychologie 2013; 57 (3): 218–229. ISSN 0009-062X.
6. Burke P. Brothers and Sisters of Children with Disabilities. London and New York: Jessica Kingsley Publishers, 2004: 1–159. ISBN 1 84310 043 6.
7. Richman S. Výchova dětí s autismem: Aplikovaná behaviorální analýza. Praha: Portál, 2006: 1–128. ISBN 978-80-7367-424-3.
8. Kukla L, a kol. Sociální a preventivní pediatrie v současném pojetí. Praha: Grada, 2016: 1–456. ISBN: 978-80-247-3874-1.
9. Kozáková Z. Osoby s kombinovanými vadami z pohledu psychopedie. In Ludíková L, a kol. Kombinované vady. 1. vyd. Olomouc: Univerzita Palackého, 2005: 1–140 s. ISBN 80-244-1154-7.
10. Burke P, Montgomery S. Finding a Voice. Birmingham: BASW Expanding Horizons Series, 2003.
11. Martirosyan A. Sibling Relationships in Families with a Child with Special Needs. A Case Study of a Norwegian Family with a Child with Down Syndrome and Her Three Siblings. Master’s Dissertation Department of Special Needs Education Faculty of educational Sciences. Oslo: University of Oslo, 2013: 1–104.
12. Lam CB, Solmeyer AR, McHale SM. Sibling relationships and empathy across the transition to adolescence. J Youth Adolesc 2012; 41: 1657–1670.
13. Skotko BG, Levine PS. Having a brother or sister with Down syndrome: Perspectives from siblings. Am J Med Genet 2006; 155 (10): 180–186.
14. Bendrix Y, Silveberg B. Sibling´s experiences of having a brother or sister with autism and mental retardation: A case study of 14 siblings from five families. J Pediatr Nurs 2007; 22 (5): 410–418.
15. Barr J, Mcleod S, Daniel G. Siblings of children with speech impairment: cavalry on the hill. Language, Speech, and Hearing Services in Schools 2008; 39 (1): 21–32.
16. Krhútová L. Sociální práce a lidé se zdravotním postižením. 2. vyd. Ostrava: Ostravská univerzita, 2013: 1–149. ISBN 978-80-7464-290-6.
17. Jackson C, Richer J, Edge JA. Sibling psychological adjustment to type 1 diabetes mellitus. Pediatr Diabetes 2008; 9: 308–311.
18. Ferraioli SJ, Harris SL. The impact of autism on siblings. Social Work in Mental Health 2010; 8: 41–53.
19. Fisman S, Wolf L, Ellison D, Freeman T. A longitudinal study of children with chronic disabilities. Can J Psychiatry 2000; 45 (4): 369–375.
20. Kaminsky L, Dewey D. Siblings relationships of children with autism. J Autism Dev Disord 2001; 31 (4): 399.
21. Vágnerová M. Současná psychopatologie pro pomáhajíci profese. Praha: Portál, 2014: 1–816. ISBN 978-80-262-0696-5.
22. Summers CR, White KR, Summers M. Siblings of children with a disability: A review and analysis of the empirical literature. Journal of Social Behavior and Personality 1994; 9: 169–184.
23. Labay LE, Walco GA. Empathy and psychological adjustment in siblings of children with cancer. J Pediatr Psychol 2004; 29: 309–314.
24. Sharpe D, Rossiter L. Siblings of children with a chronic illness: a meta-analysis. J Pediatr Psychol 2002; 27 (8): 699–710.
25. Murray JS. Siblings with cancer: a review of the literature. J Pediatr Oncol Nurs 1999; 16 (1): 25–34.
26. Russell CL, Russell CM, Russell ME. We’re here too! supporting „sis“ of children with special needs. Exceptional Parent 2003; 33 (6): 36–39.
27. Meyer DJ, Vadasy PF. Sibshops: Workshops for Siblings of Children with Special Needs. Revised. Baltimore: Paul H Brookes Publishing Company, 2008.
28. Williams PD, et al. Developmental disabilities: effects on well siblings. Issues Compr Pediatr Nurs 2010; 33 (1): 39–55.
29. National Information Center For Children And Youth With Disabilities NICHCY, News Digest, Number 11, 1994. Reviewed by athealth.com on February 1, 2014. https://athealth.com/topics/children-with-disabilities-understanding-sibling-issues-2/.
30. Stoneman Z. Siblings of children with disabilities: Research themes. Ment Retard 2005; 43 (5): 339–350.
31. Dyke P, Mulroy S, Leonard H. Siblings of children with disabilities: Challenges and opportunities. Acta Paediatrica (Oslo) 2009; 98: 23–24.
32. Carpenter PJ, Sahler OJZ. Sibling perception and adaptation to childhood cancer. Conceptual and methodological considerations. Advances in Child Health Psychology 1991; 30: 193–205.
33. Gray ED. Perceptions of stigma: the parents of autistic children. Sociology of Health & Illness 1993; 15 (1): 102–120. ISSN 0141-9889.
34. Green SE. „What do you mean what’s wrong with her?“: Stigma and the lives of families of children with disabilities. Social Science & Medicine 2003; 57: 1361–1374.
35. Giulio DP, Philipov D, Jaschin I. Families with disabled children in different European countries. Families and Societies 2014; 23: 1–44.
36. Powell TH, Ogle PA. Brothers and sisters – A special part of exceptional families. Children & Schools 1985; 9 (2): 131–132.
37. Fleary AS, Heffer WR. Impact of growing up with a chronically ill sibling on well siblings´s late adolescent functioning. ISRN Family Medicine, 2013. ID 737356.
38. Říčan P, a kol. Dětská klinická psychologie. 4. vyd. Praha: Grada, 2006: 1–608. ISBN 978-80-247-1049-5.
39. Kazak EA, et al. Surviving cancer competently intervention program (SCCIP): a cognitive-behavioral and family therapy intervention for adolescent survivors of childhood cancer and their families. Family Process 1999; 38: 175–191.
40. Lähteenmäki PM, et al. The life situation of parents over the first year after their child´s cancer diagnosis. Acta Paediatrica (Oslo) 2004; 93 (12): 1654–1660.
41. Chvátalová H. Jak se žije dětem s postižením: problematika pěti typů zdravotních postižení. Praha: Portál, 2001: 1–184. ISBN 80-7178-588-1.
42. Martinson I, Gilliss C, et al. Impact of childhood cancer on healthy school-age siblings. Cancer Nursing 1990; 13 (3): 183–190.
43. Sahler OJZ, et al. Sibling adaptation to childhood cancer collaborative study: parental views of pre- and postdiagnosis adjustment of siblings of children with cancer. J Psychoc Oncol 1995; 13: 1–20.
Labels
Neonatology Paediatrics General practitioner for children and adolescentsArticle was published in
Czech-Slovak Pediatrics
2019 Issue 5
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