#PAGE_PARAMS# #ADS_HEAD_SCRIPTS# #MICRODATA#

Introduction to Approaching Autism within the Contexts of the Neurodiversity Paradigm and the Person-Centred Approach


Authors: Csémy Miklós 1
Authors‘ workplace: Soukromá praxe Neurodiverzita. cz, Plaská 7, 150 00 Praha 5
Published in: Listy klinické logopedie 2023; 7(2): 19-26
Category: Main topic
doi: https://doi.org/10.36833/lkl.2023.020

Overview

The aim of this review is to describe the role of the neurodiversity paradigm in the perception of Autism and other neurodevelopmental phenomena and to evaluate its implications for clinical practice. The diagnostic criteria and conceptualisation of Autism have undergone a number of changes over the past hundred years. Initially, Autism was part of the concept of schizophrenia, followed by Kanner’s concept, which was later expanded to include Asperger’s syndrome; significant generalising changes in the classification of Autism are evident in the 5th edition of the DSM and the 11th edition of the ICD. Traditional medical models of Autism, such as the Triad of Impairments and the Theory of Mind are insufficient in describing a client’s autistic experience, due to the splitting nature of medical language. Splitting may influence intervention modalities, as well as how parents and professionals approach the client, and the client's own identity. The contribution of diagnosis to clinical practice is therefore limited; diagnostic tools for Autism are largely not designed to correctly differentiate co-occurring conditions, particularly trauma. Working off the diagnosis involves the risk of confusing events meaningful in the context of the client's individual development for attributes tied to the diagnosis. The language of the neurodiversity paradigm provides a way to relate to the totality of the client's experience.

Keywords:

Autism, ADHD, trauma, neurodiversity


Sources
  1. ALDRED, C., GREEN, J., ADAMS, C., 2004. A new social communication intervention for children with autism: pilot randomised controlled treatment study suggesting effectiveness. Journal of Child Psychology and Psychiatry. [online]. 45(8), s. 1420-1430. DOI: 10.1111/j.1469-7610.2004.00848.x.
  2. ALKHALDI, R. S., SHEPPARD, E., MITCHELL, P., 2019. Is there a link between autistic people being perceived unfavorably and having a mind that is difficult to read?. Journal of autism and developmental disorders. [online]. 49(10), s. 3973-3982. DOI: 10.1007/s10803-019-04101-1.
  3. ALVAREZ, A., 2012. Live company: Psychoanalytic psychotherapy with autistic, borderline, deprived and abused children. Londýn: Routledge. ISBN 9780203713839.
  4. AMERICAN PSYCHIATRIC ASSOCIATION, 2013. Diagnostic and statistical manual of mental disorders. 5. vyd. Dostupné z: https://doi.org/10.1176/appi.books.9780890425596.
  5. ASPERGER, H., 1944. Die „Autistischen psychopathen” im kindesalter. Archiv für psychiatrie und nervenkrankheiten. 117(1), s. 76-136. DOI: 10.1007/bf01837709. Dostupné z: https://sci-hub.se/10.1007/BF01837709.
  6. BAGGS, M., 2007. In My Language. [online]. YouTube. Dostupné z: https://www.youtube.com/watch?v=JnylM1hI2jc.
  7. BARON-COHEN, S., 1988. Social and pragmatic deficits in autism: Cognitive or affective?. Journal of autism and developmental disorders. [online]. 18(3), s. 379-402. DOI: 10.1007/BF02212194.
  8. BARON-COHEN, S., LESLIE, A. M., FRITH, U., 1985. Does the autistic child have a “theory of mind”?. Cognition. [online]. 21(1), s. 37-46. DOI: 10.1016/0010-0277(85)90022-8.
  9. BARON-COHEN, S., WHEELWRIGHT, S., 2004. The empathy quotient: an investigation of adults with Asperger syndrome or high functioning autism, and normal sex differences. Journal of autism and developmental disorders. [online]. 34, s. 163-175. DOI: 10.1023/b:jadd.0000022607.19833.00.
  10. BAUDINO, L. M., 2010. Autism spectrum disorder: A case of misdiagnosis. American Journal of Dance Therapy. [online]. 32(2), s. 113-129. DOI: 10.1007/s10465-010-9095-x.
  11. BLEULER, E., 1950. Dementia praecox or the group of schizophrenias. New York: International Universities Press.
  12. BOLIS, D., BALSTERS, J., WENDEROTH, N., BECCHIO, C., SCHILBACH, L., 2018. Beyond autism: Introducing the dialectical misattunement hypothesis and a Bayesian account of intersubjectivity. Psychopathology. [online]. 50(6), s. 355-372. DOI: 10.1159/000484353.
  13. BOLIS, D., DUMAS, G., SCHILBACH, L., 2023. Interpersonal attunement in social interactions: from collective psychophysiology to inter-personalized psychiatry and beyond. Philosophical Transactions of the Royal Society B. [online]. 378(1870), s. 20210365. DOI: 10.1098/rstb.2021.0365.
  14. BOTHA, M., CAGE, E., 2022. “Autism research is in crisis”: A mixed method study of researcher’s constructions of autistic people and autism research. Frontiers in Psychology. [online]. 13, s. 7397. DOI: 10.3389/fpsyg.2022.1050897.
  15. BROOK, Y., 2023. How talking therapists experience working with adult clients who have autism. Counselling and Psychotherapy Research. [online]. 23(1), s. 235-246. DOI: 10.1002/capr.12591.
  16. CARVETH, D., 2023. The Crisis in Psychoanalysis. [online]. YouTube. Dostupné z: https://www.youtube.com/watch?v=a56kfAtLqtU.
  17. CASHIN, A., BARKER, P., 2009. The triad of impairment in autism revisited. Journal of Child and Adolescent Psychiatric Nursing. [online]. 22(4), s. 189-193. DOI: 10.1111/j.1744-6171.2009.00198.x.
  18. CASSIDY, S., BRADLEY, L., SHAW, R., BARON-COHEN, S., 2018. Risk markers for suicidality in autistic adults. Molecular autism. [online]. 9, s. 1-14. DOI: 10.1186/s13229-018-0226-4.
  19. CHAPMAN, R., 2020. Defining neurodiversity for research and practice. In: Neurodiversity studies: A new critical paradigm. 1. vyd. Routledge, s. 218-220. ISBN 9780429322297.
  20. CHEN, Y. L., MARTIN, W., VIDIKSIS, R., PATTEN, K., 2021. Supporting peer engagement in adolescents on the autism spectrum with an inclusive, interest-based school. Rukopis předaný k publikování. Dostupné z: https://journals.sagepub.com/.
  21. CHEN, Y. L., SENANDE, L. L., THORSEN, M., PATTEN, K., 2021. Peer preferences and characteristics of same-group and cross-group social interactions among autistic and non-autistic adolescents. Autism. [online]. 25(7), s. 1885-1900. DOI: 10.1177/13623613211005918.
  22. CONSTANTINO, C. D., 2018, September. What can stutterers learn from the neurodiversity movement?. Seminars in Speech and Language. [online]. 39(4), s. 382-396. DOI: 10.1055/s-0038-1667166.
  23. CROMPTON, C. J., ROPAR, D., EVANS-WILLIAMS, C. V., FLYNN, E. G., FLETCHER-WATSON, S., 2020. Autistic peer-to-peer information transfer is highly effective. Autism. [online]. 24(7), s. 1704-1712. DOI: 10.1177/1362361320919286.
  24. DAVID ZELAZO, P., JACQUES, S., BURACK, J. A., FRYE, D., 2002. The relation between theory of mind and rule use: evidence from persons with autism-spectrum disorders. Infant and Child Development: An International Journal of Research and Practice. [online]. 11(2), s. 171-195. DOI: 10.1002/icd.304.
  25. DELL’OSSO, L., CREMONE, I. M., NARDI, B., TOGNINI, V., CASTELLANI, L., PERRONE, P., AMATORI, G., CARPITA, B., 2023. Comorbidity and Overlaps between Autism Spectrum and Borderline Personality Disorder: State of the Art. Brain Sciences. [online]. 13(6), s. 862. DOI: 10.3390/brainsci13060862.
  26. DETHORNE, L. S., SEARSMITH, K., 2021. Autism and neurodiversity: Addressing concerns and offering implications for the school-based speech-language pathologist. Perspectives of the ASHA Special Interest Groups. [online]. 6(1), s. 184-190. DOI: 10.1044/2020_PERSP-20-00188.
  27. DODDS, R. L., 2021. An exploratory review of the associations between adverse experiences and autism. Journal of Aggression, Maltreatment & Trauma. [online]. 30(8), s. 1093-1112. DOI: 10.1080/10926771.2020.1783736.
  28. DONOVAN, M. P., 2020. The Department of Defense Comprehensive Autism Care Demonstration Annual Report. Report to the Committees on Armed Services of the Senate and House of Representatives. Dostupné z: https://www.health.mil.
  29. DYCK, E., RUSSELL, G., 2020. Challenging psychiatric classification: Healthy autistic diversity and the neurodiversity movement. Healthy minds in the twentieth century: In and beyond the asylum. [online]. s. 167-187. Dostupné z: https://link.springer.com/chapter/10.1007/978-3-030-27275-3_8.
  30. ENGEL, G. L., 1977. The need for a new medical model: a challenge for biomedicine. Science. [online]. 196(4286), s. 129-136. DOI:  10.1126/science.847460.
  31. EVANS, B., 2013. How autism became autism: The radical transformation of a central concept of child development in Britain. History of the human sciences. [online]. 26(3), s. 3-31. DOI: 10.1177/0952695113484320.
  32. FAIRBAIRN, W. R. D., 1940. Schizoid factors in the personality. In: Psychoanalytic Studies of the Personality. Routlege, 1952. ISBN 9780203129449.
  33. FRIGAUX, A., EVRARD, R., LIGHEZZOLO-ALNOT, J., 2019. ADI-R and ADOS and the differential diagnosis of autism spectrum disorders: Interests, limits and openings. L'encephale. [online]. 45(5), s. 441-448. DOI: 10.1016/j.encep.2019.07.002.
  34. GERNSBACHER, M. A., YERGEAU, M., 2019. Empirical failures of the claim that autistic people lack a theory of mind. Archives of scientific psychology. [online]. 7(1), s. 102. DOI: 10.1037/arc0000067.
  35. GREAVES-LORD, K., SKUSE, D., MANDY, W., 2022. Innovations of the ICD-11 in the field of Autism Spectrum Disorder: A psychological approach. Clinical Psychology in Europe. [online]. 4. DOI: 10.32872/cpe.10005.
  36. HACKING, I., 2009. Autistic autobiography. Philosophical Transactions of the Royal Society B: Biological Sciences. [online]. 364(1522), s. 1467-1473. DOI: 10.1098/rstb.2008.0329.
  37. HAPPÉ, F., RONALD, A., PLOMIN, R., 2006. Time to give up on a single explanation for autism. Nature neuroscience. [online]. 9(10), s. 1218-1220. DOI: 10.1038/nn1770.
  38. HAPPÉ, F., RONALD, A., 2008. The ‘fractionable autism triad’: a review of evidence from behavioural, genetic, cognitive and neural research. Neuropsychology review. [online]. 18, s. 287-304. DOI: 10.1007/s11065-008-9076-8.
  39. HULL, L., LEVY, L., LAI, M. C., PETRIDES, K. V., BARON-COHEN, S., ALLISON, C., SMITH, P., MANDY, W., 2021. Is social camouflaging associated with anxiety and depression in autistic adults?. Molecular autism. [online]. 12(1), s. 1-13. DOI: 10.1186/s13229-021-00421-1.
  40. KANNER, L., 1943. Autistic disturbances of affective contact. Nervous child. [online]. 2(3), s. 217-250. Dostupné z: kanner.1943.pdf (th-hoffmann.eu).
  41. KANNER, L., 1971. Follow-up study of eleven autistic children originally reported in 1943. Journal of autism and childhood schizophrenia. [online]. 1(2), s. 119-145. DOI: 10.1007/BF01537953.
  42. KAREN, W., 2022. What is Induced Psychological Splitting and Why Does it Matter? Dostupné z: https://karenwoodall.blog/2022/09/13/what-is-induced-psychological-splitting-and-why-does-it-matter/.
  43. KILDAHL, A. N., BAKKEN, T. L., IVERSEN, T. E., HELVERSCHOU, S. B., 2019. Identification of post-traumatic stress disorder in individuals with autism spectrum disorder and intellectual disability: A systematic review. Journal of Mental Health Research in Intellectual Disabilities. [online]. 12(1-2), s. 1-25. DOI: 10.1080/19315864.2019.1595233.
  44. KLEIN, M., 1975. Love, guilt and reparation and other works 1921-1945: Hogarth Press. ISBN 9780701204082.
  45. KOLVIN, I., 1971. Psychoses in childhood – a comparative study. In: RUTTER, M. (ed.). Infantile Autism: Concepts, characteristics and treatment. Churchill-Livingstone, 1971, s. 7-26. 
  46. KUHN, T. S., 2012. The structure of scientific revolutions. Chicago: University of Chicago Press. ISBN: 9780226458113.
  47. KUNC, N., VAN DER KLIFT, E., 2019. Being Realistic Isn't Realistic: Collected essays on disability, identity, inclusion and innovation. Victoria, BC: Tellwell Talent. ISBN: 978-1-77370-837-9.
  48. KUPFERSTEIN, H., 2018. Evidence of increased PTSD symptoms in autistics exposed to applied behavior analysis. Advances in Autism. [online]. 4(1), s. 19-29. DOI: 10.1108/AIA-08-2017-0016.
  49. LAI, M. CH., KASSEE, C., BESNEY, R., BONATO, S., HULL, L., MANDY, W., SZATMARI, P., AMEIS, S. H., 2019. Prevalence of co-occurring mental health diagnoses in the autism population: a systematic review and meta-analysis. The Lancet Psychiatry. [online]. 6(10), s. 819-829. DOI: 10.1016/S2215-0366(19)30289-5.
  50. LAI, M. CH., LOMBARDO, M. V., CHAKRABARTI, B., BARON-COHEN, S., 2013. Subgrouping the autism “spectrum": reflections on DSM-5. PLoS Biology. [online]. 11(4), s. e1001544. DOI: 10.1371/journal.pbio.1001544.
  51. LONDON, E., 2007. The role of the neurobiologist in redefining the diagnosis of autism. Brain pathology. [online]. 17(4), s. 408-411. DOI: 10.1111/j.1750-3639.2007.00103.x.
  52. LOVAAS, O. I., 1987. Behavioral treatment and normal educational and intellectual functioning in young autistic children. Journal of consulting and clinical psychology. [online]. 55(1), s. 3. DOI: 10.1037/0022-006X.55.1.3.
  53. LOVETT, H., 1996. Learning to listen: positive approaches and people with difficult behaviour. Baltimore: H. Brookes Publishing Co. ISBN: 978-1557661647
  54. MACK, J. A., 2019. Lived experiences of counselors providing counseling to adults with autism spectrum disorder: A qualitative phenomenological study. Dissertations. University of Northern Colorado. Dostupné z: https://digscholarship.unco.edu/dissertations/629.
  55. MAHONEY, G., PERALES, F., 2003. Using relationship-focused intervention to enhance the social-emotional functioning of young children with autism spectrum disorders. Topics in Early Childhood Special Education. [online]. 23(2), s. 74-86. DOI: 10.1177/02711214030230020301.
  56. MARKRAM, K., MARKRAM, H., 2010. The intense world theory–a unifying theory of the neurobiology of autism. Frontiers in human neuroscience. [online]. 4, s. 224. DOI: 10.3389/fnhum.2010.00224.
  57. MILTON, D. E., 2012. On the ontological status of autism: The ‘double empathy problem’. Disability & society. [online]. 27(6), s. 883-887. DOI: 10.1080/09687599.2012.710008.
  58. MOSKOWITZ, A., DORAHY, M. J., SCHÄFER, I., 2019. Psychosis, trauma and dissociation: Evolving perspectives on severe psychopathology. John Wiley & Sons. ISBN 9781119952855.
  59. OLIVER, M., 1990. The individual and social models of disability. Dostupné z: htps://disability-studies.leeds.ac.uk/wp-content/uploads/sites/40/library/Oliver-in-soc-dis.pdf.
  60. PÖTHE, P., 2022. Vývojová a vztahová terapie dětí. Praha: Portál. ISBN 978-80-262-1958-3.
  61. PÖTHE, P., OČKOVÁ, L., 2022. O autismu a posttraumatické stresové poruše se Sheilou Levi. Aplikovaná dětská psychoanalýza. [online]. 1(2), s. 7-15. Dostupné z: https://www.adpsa.cz.
  62. ROGERS, C. R., 1961. On becoming a person. Boston: Houghton Mifflin. ISBN 0-395-75531-X.
  63. RUSSELL, G., 2020. Critiques of the neurodiversity movement. In: KAPP, S. K.: Autistic community and the neurodiversity movement. Stories from the frontline. Springer Nature, 2020, s. 287-303. ISBN 978-981-13-8436-3.
  64. SANDBANK, M., BOTTEMA-BEUTEL, K., CROWLEY, S., CASSIDY, M., DUNHAM, K., FELDMAN, J. I., CRANK, J., ALBARRAN, S. A., RAJ, S., MAHBUB, P., WOYNAROSKI, T. G., 2020. Project AIM: Autism intervention meta-analysis for studies of young children. Psychological Bulletin. [online]. 146(1), s. 1. DOI: 10.1037/bul0000215.
  65. SANDOVAL-NORTON, A. H., SHKEDY, G., SHKEDY, D., 2019. How much compliance is too much compliance: Is long-term ABA therapy abuse?. Cogent Psychology. [online]. 6(1), s. 1641258. DOI: 10.1080/23311908.2019.1641258.
  66. SASSON, N. J., FASO, D. J., NUGENT, J., LOVELL, S., KENNEDY, D. P., GROSSMAN, R. B., 2017. Neurotypical peers are less willing to interact with those with autism based on thin slice judgments. Scientific reports. [online]. 7(1), s. 1-10. DOI: 10.1038/srep40700.
  67. SCHEERER, N. E., BOUCHER, T. Q., SASSON, N. J., IAROCCI, G., 2022. Effects of an educational presentation about autism on high school students' perceptions of autistic adults. Autism in Adulthood. [online]. 4(3), s. 203-213. DOI: 10.1089/aut.2021.0046.
  68. SHEPPARD, E., PILLAI, D., WONG, G. T. L., ROPAR, D., MITCHELL, P., 2016. How easy is it to read the minds of people with autism spectrum disorder?. Journal of autism and developmental disorders. [online]. 46, s. 1247-1254. DOI: 10.1007/s10803-015-2662-8.
  69. SCHUCK, R. K., TAGAVI, D. M., BAIDEN, K. M., DWYER, P., WILLIAMS, Z. J., OSUNA, A., FERGUSON, E. F., JIMENEZ MUÑOZ, M., POYSER, S. K., JOHNSON, J. F., VERNON, T. W., 2021. Neurodiversity and autism intervention: Reconciling perspectives through a naturalistic developmental behavioral intervention framework. Journal of Autism and Developmental Disorders. [online]. 52(10), s. 1-21. DOI: 10.1007/s10803-021-05316-x.
  70. SINCLAIR, J., 1993. Don’t mourn for us. [online]. Dostupné z: http://www.autreat.com/dont_mourn.html.
  71. SINGER, J., 1999. Why can’t you be normal for once in your life? From a problem with no name to the emergence of a new category of difference. In: CORKER, M., FRENCH, S. Disability discourse. Disability, human rights, and society. McGraw-Hill Education, 1999, s. 59-70. ISBN 9780335202225. 
  72. SMITH, T., 2013. What is evidence-based behavior analysis? The Behavior Analyst. [online]. 36(1), s. 7-33. DOI: 10.1007/BF03392290.
  73. SMITH, T., GROEN, A. D., WYNN, J. W., 2000. Randomized trial of intensive early intervention for children with pervasive developmental disorder. American journal on mental retardation. [online]. 105(4), s. 269-285. DOI: 10.1352/0895-8017(2000)105<0269:RTOIEI>2.0.CO;2. 
  74. SMITH, T., GROEN, A. D., WYNN, J. W., 2001. Erratum. American Journal of Mental Retardation. [online]. 106(3), s. 208. DOI:  10.1352/0895-8017(2000)105<0269:RTOIEI>2.0.CO;2.
  75. SONUGA-BARKE, E., THAPAR, A., 2021. The neurodiversity concept: is it helpful for clinicians and scientists?. The Lancet Psychiatry. [online]. 8(7), s. 559-561. DOI: 10.1016/S2215-0366(21)00167-X.
  76. SUKHAREVA, G., REBECCHI, K., 2022. Autistic Children: Grunya Sukhareva. Vydáno nezávisle. ISBN 978-1690986768.
  77. TABOAS, A., DOEPKE, K., ZIMMERMAN, C., 2023. Preferences for identity-first versus person-first language in a US sample of autism stakeholders. Autism. [online]. 27, s. 565-570. DOI: 10.1177/13623 613221130845.
  78. TAKARA, K., KONDO, T., KUBA, T., 2015. How and why is autism spectrum disorder misdiagnosed in adult patients?: From diagnostic problem to management for adjustment. Mental health in family medicine. [online]. 11(2), s. 73-88. DOI:10.25149/1756-8358.1102011.
  79. THAPAR, A., COOPER, M., RUTTER, M., 2017. Neurodevelopmental disorders. The Lancet Psychiatry. [online]. 4(4), s. 339-346. DOI: 10.1016/S2215-0366(16)30376-5.
  80. TSAI, L. Y., 2014. Impact of DSM-5 on epidemiology of Autism Spectrum Disorder. Research in Autism Spectrum Disorders. [online]. 8(11), s. 1454-1470. DOI: 10.1016/j.rasd.2014.07.016.
  81. ÚSTAV ZDRAVOTNICKÝCH INFORMACÍ A STATISTIKY ČR, 2023. MKN-11: Mezinárodní klasifikace nemocí: jedenáctá revize. Aktualizované vydání k 1. 1. 2023.
  82. WALKER, N., 2014. Neurodiversity: Some basic terms and definitions. Dostupné z: https://neuroqueer.com/neurodiversity-terms-and-definitions/.
  83. WALKER, N., 2021. Neuroqueer Heresies: Notes on the Neurodiversity Paradigm, Autistic Empowerment, and Postnormal Possibilities. Fort Worth, TX: Autonomous Press, 2021. [online]. DOI: 10.1080/02604027.2022.2094194.
  84. WALKER, N., RAYMAKER, D. M., 2021. Toward a neuroqueer future: An interview with Nick Walker. Autism in Adulthood. [online]. 3(1), s. 5-10. DOI: 10.1089/aut.2020.29014.njw.
  85. WHELPLEY, C. E., HOLLADAY-SANDIDGE, H. D., WOZNYJ, H. M., BANKS, G. C., 2023. The biopsychosocial model and neurodiversity: A person-centered approach. Industrial and Organizational Psychology. [online]. 16(1), s. 25-30. DOI: 10.1017/iop.2022.95.
  86. WING, L., GOULD, J., 1979. Severe impairments of social interaction and associated abnormalities in children: Epidemiology and classification. Journal of autism and developmental disorders. [online]. 9(1), s. 11-29. DOI: 10.1007/BF01531288.
  87. WING, L., 1981. Asperger’s syndrome: a clinical account. Psychological Medicine. [online]. 11(1), s. 115-129. DOI: 10.1017/s0033291700053332.
  88. WING, L., 1981. Clarification on Asperger’s syndrome. Journal of Autism and Developmental Disorders. [online]. 16. s. 513-515 DOI: 10.1007/BF01531716.
  89. WINNICOTT, D. W., 1960. Ego distortion in terms of true and false self. Londýn: Routledge. ISBN: 9780429482410.
  90. WORLD HEALTH ORGANIZATION, 2012. International Statistical Classification of Diseases and Related Health Problems, 10th revision. 2. vyd. World Health Organization. Dostupné z: https://apps.who.int/iris/handle/10665/42980.
  91. World Health Organization, 2019. International Statistical Classification of Diseases and Related Health Problems, 11th revision. World Health Organization. Dostupné z: https://icd.who.int/.
  92. YERGEAU, M. R., 2018. Authoring autism: On rhetoric and neurological queerness. Durham, London: Duke University Press. ISBN 978-0-8223-7218-9.
Labels
Clinical speech therapy General practitioner for children and adolescents
Login
Forgotten password

Enter the email address that you registered with. We will send you instructions on how to set a new password.

Login

Don‘t have an account?  Create new account

#ADS_BOTTOM_SCRIPTS#